Families Impacted by Fragile X and Fragile X Gene Premutation Invited to Informational Event

Christina Knott

Are you or your family impacted by Fragile X or the Fragile X gene premutation? The Kansas City chapter of the National Fragile X Foundation is hosting a meet and greet with providers and researchers at the University of Kansas Center for Autism Research and Training (KCART). 

"A man holds a child on his shoulders against a yellow background"

The event will be from 10 a.m. to noon Saturday, April 20, at Chicken N Pickle, 5901 W. 135th St., Overland Park, Kan. Clinical service and research opportunities for individuals with Fragile X or Fragile X gene (FMR1) premutations will be discussed. Food and drinks will be provided.  

Fragile X syndrome is the most common inherited intellectual and developmental disability, affecting up to 100,000 Americans. Further, about 1.5 million Americans have smaller premutations of the Fragile X gene, that can be associated with different health issues throughout the lifetime. The National Fragile X Foundation serves those impacted by Fragile X or the premutation through advocacy, education, research, and treatment.   

KCART, which is a part of the KU Life Span Institute, aims to advocate for and support autistic people, individuals with related neurodevelopmental issues, and their families across the lifespan. They conduct research, train professionals and families, and connect individuals and their families with clinical, educational, and community resources.  

Register to attend the meet and greet event at this link. Questions? Email Sean Swindler at sswindler@ku.edu or call 913-897-8471.