Supporting Decision Making: Learning from Self-Advocate Experience
The purpose of this project is to develop and implement a planning process, the Supported Decision-Making Planning Process for Kansans (SDMPPK), that will support people with I/DD and their families to develop SDM plans based on the individual with I/DDs long-term goals. We will accomplish this by partnering with the Self-Advocate Coalition of Kansas (SACK) to combine the lived experience of SDM as currently practiced by self-advocates with the long history of self-determination research at KUCDD. We have three main objectives: 1) Conduct focus groups to understand the SDM arrangements self-advocates have in place. 2) Develop a planning process (the SDMPPK) based on self-advocate experience with SDM and the SDMI. 3) Conduct 2 trainings to educate self-advocates and their family members/caregivers on how to use the SDMPPK to develop SDM plans. 4) Create webpage to serve as a first stop for Kansans interested in SDM.
Evan Dean, PhD, OTR/L
KS-Schiefelbusch Institute for Life Span